• Reflections in Colour, launched on 10 May 2021, is a series of pictures born of the friendship between a businessman and a successful cinematographer • Carmela, seven, from Devizes in Wiltshire has LMNA congenital muscular dystrophy • She is one of 50 people with different muscle-wasting conditions who are featured in the exhibition reflecting on how the pictures make them feel • A percentage of profits from the exhibition will be donated to Muscular Dystrophy UK (MDUK)
Carmela, aged six from Devizes in Wiltshire, has LMNA congenital muscular dystrophy. The muscles in her upper body are deteriorating and she needs help to brush her teeth, carry items, hold a drink, and eat.
However, her legs have the most muscle power in her body and she can still walk up to five minutes at a time. At all other times you will see her zooming about in the Wiltshire countryside in her 4x4 Powerchair, or down hills in her frame runner. Carmela has a ‘can-do’ attitude and will keep striving to stay strong for as long as possible, even if it means she has to do things differently.
For Reflections in Colour, Carmela has chosen to comment on Sail at Sunset.
The bright yellow sunshine is a reminder of happy times, playing without the increased pain and discomfort that comes with cold weather. The sun, sea and sand remind me of the happy times on the beach when I was small and light enough to be carried, but now I have limited opportunities with the Powerchair, because not every beach has access and because I fall so easily trying to walk in sand, which is like walking in sinking mud for me.
The birds in the sky remind me of my dreams when I am flying freely through the air, able to go anywhere without any challenging obstacles and able to do everything by myself. I’m excited by the pictures in the sail because I would like to be an artist when I grow up. I know this is achievable, so it gives me hope and motivation to keep striving for my dreams, because anything is possible when you believe you can.
Retired Director of Photography, Chris has worked in film and television all over the world, with credits from film classics like North Sea Hijack and International Velvet, through countless commercials, documentaries and television shows including Minder, Peak Practice and Soldier Soldier and, more recently, New Tricks and Doc Martin.
He has created all the photographs. The exhibition, which features very high-quality prints which are mounted on Foamex 3mm board and printed in Scotland, are available to buy through Chris’ website: crispandsharp.co.uk.
Andrew said: “My friendship with Chris developed after he organised the Kent Castle Walk, four years ago, in aid of MDUK.
“The idea for ‘Reflections in Colour' was born after we shared a cup of tea after the walk. Chris’ photograph named ‘Pot of Tree' was a symbol of sharing and fun. We initially named this new fundraising campaign 'Pot of Tree' so we could share the photographs and reflections with everyone. Every sale will result in a donation to MDUK.
“Chris’ daughter also has muscular dystrophy, and after that first experience together, Chris and I would often meet for coffee.
“I was blown away by his wonderful artwork, and what we originally planned as an actual show in a Whitstable art gallery has become a virtual exhibition.”
Chris said: “When I met Andrew, his enthusiasm and energy made everything possible. We have remained very good friends.
Louise Moffat, MDUK Regional Development Manager for London, South East and East England, said: “I am filled with admiration for the work Andrew and Chris have done to create this extensive exhibition. The power in their friendship is fantastic. #mymate. I am very grateful to them for donating to MDUK through the sales. The images are completely unique and all of a very high quality. I can’t decide which one I would choose to hang on my wall.”